— 1 — We’ve been getting creative to keep Sarah Kate both entertained and educated while she’s out of school. One idea Mr. Andi had was to build a raised bed garden, which they did two weekends ago and planted with a variety of things that she picked out at the Home Depot garden center. Unfortunately,… Read More
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Our Experience with Selective Dorsal Rhizotomy
I received an email earlier this week from a mom who wanted more information about selective dorsal rhizotomy (SDR), and specifically about Dr. Oakes, the neurosurgeon who did it. I’ve mentioned several times that she had SDR when she was three, but because I wasn’t blogging then I haven’t provided a lot of detail. Since… Read More
6 Signs My Stress Level Has Reached Its Peak
1. I desperately need to exercise, but I don’t want to do it. It’s probably more accurate to say that I want to exercise to let off some steam, but I dread it and have to force myself to go because I know that my body is so tightly wound that every running step will… Read More
Sun-Beams: May 11, 2014
Sun-Beams is a collection of links to stories, articles, photos, or videos I have come across that I believe will inspire, inform, or encourage you, as well as my favorite photo posted on my other blog, Violet Film, from the past week. Red Sox fan with Down syndrome sings anthem at Fenway – What an honor!… Read More
Seven Snippets: One-in-a-Million Odds, Thank You Notes, and Best and Worst From Idol (Even Though I Don’t Watch)
— 1 — Did you see watch last week’s episode of Call the Midwife? I’d been looking forward to it because I knew that Sarah Gordy, an actress with Down syndrome, appeared in the episode. I was a little wary of the treatment of her character and of the storyline, fearing the message that would… Read More
Casts Away!
On the road again… Unlike the legendary Willie Nelson, I’m not enjoying these road trips very much, and we certainly aren’t going places that we’ve never been. But On the Road Again is our life right now, and will be for awhile longer. (Note: Nathan is using a booster, it’s just not obvious because they… Read More