Remember when I boldly declared – one month ago – that I had picked a Word of the Year? No? Well, that word was CHOOSE. Back then I wrote: “I’m incredibly indecisive, which I’ve mentioned many times before, so I’ll take CHOOSE as a challenge to be better at making decisions. I also need to be better at choosing when it comes to my priorities. ’Nuff said.”
Well, it didn’t take long for choosing to become a challenge.
I’m the one-woman epitome of “analysis paralysis”. I’ve been praised at times for my ability to see all sides of an issues, even when I have strong feelings about the subject matter, and oftentimes that ability is an asset. But because I’m programmed to look at things from so many different angles, I have a hard time making a decision when an action needs to be taken (or not).
That’s where I am right now with Sarah Kate’s upcoming surgery.
The difficult part as a parent is knowing how to put all the pieces together to make the best choice when three (so far) different professionals don’t agree.
- The orthopedist has one perspective, because he’s an expert in the procedures, but he doesn’t know our family or Sarah Kate well because he only sees her briefly every year or two.
- The clinic physical therapist has a different perspective because she has been directly involved in rehab of children who’ve had these procedures, and because she’s worked with Sarah Kate when she had extensive rehab following her rhizotomy eight years ago.
- The local physical therapist has yet another perspective, because she has worked with Sarah Kate regularly for the past several years – she knows Sarah Kate and our family better than anyone.
- The folks at Gillette don’t know us at all, since we haven’t been there yet, but they reportedly are ahead of the curve in this particular area, and they have a long history and the best data available on long term outcomes of orthopedic procedures on children with cerebral palsy.
Few things stress me out more than limbo, and there are a lot of dominoes stacked up behind this decision. I’m traveling for four days in March, Sarah Kate is traveling for three days the week after that; we have Botox scheduled for the third week of March but we can’t do it before we go to Gillette for the gait study; I have a minor procedure scheduled for the day after the Botox that I want to get in before April comes and the serious business begins.
And of course, there’s an as-yet-undetermined surgery sometime in April with a summer of rehab to follow.
My gut tells me that we need to stay the more conservative, less invasive course. Going with that option doesn’t preclude the other option later, though doing both is certainly not ideal. But that other part of me wants to make absolutely sure that we’re doing the right thing, and if the latest research says the more invasive option will have the better longterm outcome, I don’t want to make a mistake out of fear.
So, yes, choosing is tough.
The clock is ticking, so the decision will be eventually be forced on me if The Right Choice doesn’t make itself clear first. I’m trying to remind myself that Perfection is the Enemy of the Good, but with the stakes seemingly so high, I don’t feel comfortable (yet) in settling for the Good.
Annie says
Andi. Three thoughts. First this comes down to a risk reward analysis. Is the worst risk of the more conservative approach that you wouldn’t have done enough and Sarah Kate would need to go through this again? I’m not minimizing that but I wanted to be clear. So what’s the worst risk of the more aggressive approach? Longer rehab? More risk of a problem? I’m not sure but that obviously most important to know. Second until you have the gait study are you even in a position to weigh all the risks and rewards ? I’m an excellent decision maker but without all information that’s impossible so trying to even weigh the options will only make you crazy. Three. Is there someone ( not mr Andi or anyone else too close to Sara Kate ) who can help you talk through the risks rewards. This persons job would not be to help you decide but rather help you make sure you are properly weighing all risk rewards and not getting “stuck” on something not really relevant. Which can happen if you try to do this without an outsider. This IS tough. My thought really are with you. Annie.
Noah's Mom says
Just know we are thinking about you and praying for peace about a decision/choice. Been in between similar rocks and hard places…my heart goes out to you.
Heather says
Oh that is so hard to be the one with the global view (and also most invested). How frustrating that not everyone is on the same page. I hope you feel good about whatever decision you make.
Good luck.
Heather