I want to start off by offering an apology for being terribly lax about responding to comments lately. I absolutely, positively, always without exception read every single comment, but here lately I’ve been a bit slack or, at best, late about replying. I’m going to do better going forward, because I appreciate the time and effort that you take to share your thoughts with me.
As I mentioned yesterday, I’m the featured photographer today on “Behind the Lens” on CaptureYour365.com. I started my 365 project at the beginning of 2011, just a few short weeks before the site launched, making me a Founding Member. It’s a fantastic community of unpretentious people who love to take photos and document their lives – go check it out, even if you don’t care a whit about reading about me. 🙂
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You may have heard that the National Institutes of Health (NIH) has created a Down syndrome registry. Per the NIH, the registry (“DS-Connect”) “will allow people with Down syndrome and their family members, researchers, and parent and support groups to share information and health history in a safe, confidential, online database.” Sounds great, right?
I’m not signing Nathan up right away. Something about a government database of people who have historically not been treated well by government entities who claimed to have their best interests at heart makes me a little … resistant. Am I the only one?
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Sarah Kate has two weeks of softball practice under her belt and her first game is Monday. Things haven’t gone all that well. Evaluations were good and it’s been downhill from there – a growth spurt has made it difficult for her to even stand for a whole practice, much less hit and field. I’m not holding my breath for Monday night’s game.
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Speaking of high hopes dashed, potty training has gone in the tank (did you see what I did there? 🙂 ) ever since Nathan went back to school. That’s the bad news. The good news is that it appears that the school is humoring me, as no one has said a word about it, and I haven’t said anything, either. It’s a big delicate delusional balance of denial, and I’m okay with that. For now.
Our local Buddy Walk is coming up in a month – October 19, to be exact. I’m a total slacker because I haven’t yet set up our fundraising page nor invited anyone to walk with us. I struggle with it each year because our local Down syndrome group really isn’t “our” group – both its name and focus are on another county, not ours, so in some ways I feel a little bit like we don’t really belong there. On the other hand, though, it’s a chance to be with like-minded families so how can I pass up that opportunity? Yeah, I know. We can’t.
I am SO READY for the new fall series premieres. I’ve resorted to re-watching old episodes of Big Love, even though I already watched all five seasons when they originally aired. What shows are you looking forward to?
Have a great weekend!
This post was inspired by and is linked to Conversion Diary‘s 7 Quick Takes.
I’m stumbling upon you via Jen’s 7QT. What an inspiration you are! I’ve seen the 365 project around the webs, but haven’t actually checked it out. Will do so now for sure. Also, the government registry makes my spidy sense tingle as well. You’re wise to wait, I think. I do hope it turns out to be legit, or there is a way to access the information and support without “registering” your child. I will definitely be sharing your site with friends – what a great witness!
Thanks so much for visiting, Rakhi! You really should try a 365 project – it’s so rewarding and a great way to appreciate the small joys in life.