Over the past nineteen months since Nathan’s birth, I’ve read many stories of moms who were devastated when they found out their children were (or would be) born with Down syndrome.
My story is a little different.
Someday I plan to tell it all, but for now I’ll summarize it in this way: before Nathan was born, I’d had one first trimester miscarriage, lost a second child to triploid syndrome at 20 weeks gestation, and gave birth to a premature daughter with cerebral palsy. From the time I learned I was pregnant for a fourth time until I heard Nathan’s cry in the delivery room, I never believed I would give birth to a healthy, typical baby. The diagnosis of Down syndrome was, in some ways, a relief.
Mr. Andi, on the other hand, was ecstatic from that first moment – giddy, even, when the ultrasound tech told us we were having a boy. For years, Mr. Andi had always dreamed of having a son that he could take fishing and hunting. He was over the moon with joy, and even more so when he witnessed the birth of that son – on his 40th birthday.
While I was being stitched up and then wheeled to recovery, Mr. Andi followed the baby to the nursery. It wasn’t long before he noticed the nurse on the phone and overheard her quietly say “…and a few other things…” and knew immediately that something was wrong. Moments later, he sat down in recovery with a distant look on his face – he wouldn’t look me in the eye. Shortly thereafter, the pediatrician came in and told us that she suspected Down syndrome.
The next 36 hours were painful for me. Mr. Andi barely spoke and withdrew into a dark place inside himself. I didn’t worry about the baby – I worried about Mr. Andi. His heart was breaking, and there was nothing I could do. Late at night, while he was sleeping, I emailed a few close friends and begged them to pray for him.
I was fearful of what might lie ahead.
We are raising our children Catholic, although Mr. Andi is not Catholic. He attends church regularly, but he does it largely out of a sense of duty. I wasn’t sure how he would feel about me calling in a priest to talk to him, but eventually I began to worry so much about his mental state that, when he was out of the room for a moment, I called the nurse’s station and begged them to call the church for me.
When Deacon Hank O’Brien came into the hospital room, I was a little bit disappointed, as I had hoped for either Father Steve or Deacon George (I felt Mr. Andi would be more receptive to one of them, because he likes Father Steve and has talked with Deacon George about faith matters before). Mr. Andi politely acknowledged Deacon Hank, but he was distant and quiet.
I quietly whispered the bare minimum of details about Nathan and Mr. Andi to Deacon Hank, and begged him to pray for us – for him. Deacon Hank promised that he would, and left. A short time later, he returned with a wooden Tau cross – a symbol of the Franciscans, which Deacon Hank was – and told me that he was giving it to me. He said that it would be a constant reminder to me that he was praying for my family.
Within an hour of Deacon Hank’s visit, Mr. Andi stood up and said, “I’m going to work.” At first I didn’t know how to respond – was he really leaving me here in the hospital? What he said next surprised and pleased me: “I always tell my guys that you can’t change what happens to you, you can only choose how you respond. I need to walk the talk.”
From that moment forward, Mr. Andi never looked back.
He’s never again been sad, or disappointed, or even a little melancholy about Nathan’s diagnosis of Down syndrome. If he were the one writing this post instead of me, he would tell you that he’s not a religious person, but that Deacon Hank’s prayers are what changed him. Deacon Hank may have even saved him.
Nathan’s first Mass was on Easter Sunday 2010 when he was only eight days old. For the next several months, whenever we went to Mass and found ourselves in Deacon Hank’s communion line, I was happy. Even if Nathan was sleeping in Mr. Andi’s arms, I would take him up because Deacon Hank gave the best blessings to the children, and always referred to Nathan as “special child.” Other than the two visits in the hospital and the communion line, however, I never had any other interaction with him.
I didn’t see Deacon Hank at Mass during December and January, but I assumed it was because of the chaos of the holiday season and my travel schedule at the beginning of the year – I attended Mass regularly, but not always at my “regular” times, and not always at our parish. A few weeks into the new year, I went to Sunday evening Mass with the kids and learned that Deacon Hank had died. I sat in my pew near the back of the church throughout Mass that evening and cried quietly for a man that I barely knew, but who I believe changed my life.
November 1 is All Saints’ Day and today, November 2, is All Souls’ Day – these days are set aside by the Church to remember the faithful departed. I thought it was only fitting that the first post here following Down Syndrome Awareness Month would be a tribute to this man that helped bring Mr. Andi out of the shadows and into the light.
Thank you, Deacon Hank. Though we didn’t know you well – at all, really – your absence is felt each and every time we enter God’s house.
Eternal rest grant unto him, O Lord, and let perpetual light shine upon him. May the souls of the faithful departed, through the mercy of God, rest in peace. Amen.
You can read more about Deacon Hank O’Brien here.
k says
I am so sorry for the loss of your beloved priest. I am grateful for you for what he did for your family and Mr. Andi.
<3
Ashley Nance says
Oh Andi,
What a beautiful tribute to Deacon Hank. Even though he is not here physically, his memories can still bring you joy.
~ashley
James 5:16
“Therefore confess your sins to each other and pray for each other so that you may be healed. The prayer of a righteous person is powerful and effective.”
Leanne Murray says
I have to respond to your post because I, too, had a similar encounter with Deacon Hank. My 3rd son was born at Thomas Hospital on Nov 21, 2009 at 31 weeks gestation. He was sent to Women’s and Children’s in Mobile while I stayed at Thomas recovering from a c-section and a few days later pneumonia. Deacon Hank came to visit me the day after Reid was born and left me with such kind, encouraging words and the most beautiful prayer I have ever heard……all from the bottom of his heart. I had seen him in mass many times before that visit, but like you did not know him. He touched me in a way that I will never forget .Upon hearing of his death, I, too, just silently cried for the man who gave me so much comfort in my hospital room that Nov day. i think of him often and wish I had the chance to tell him how much he meant to me.
Adrienne K says
Oh, Andi. Oh. Andi. The tears are streaming down my face. Thank you so much for this beautiful post. My heart is just full of so many things I want to say but I don’t want to detract from anything here. Thank you for blessing us with this story today!!
Jennifer says
What a beautiful tribute to an obviously special man!! Thanks for sharing!!
Shasta Kearns Moore says
Wish we had somebody like Deacon Hank to pray for us! My husband’s still a wreck…. :S
Linda says
I am loving your blog. This is a beautiful post. I don’t know any of you but that picture of your husband and son left me with tears rolling down my face.
Kerin says
Now that I have composed myself after reading this exerpt from your blog, I would like to take a moment to say Thank You for taking the time to remember Deacon Hank. It’s rather appropriate that I would have the opportunity to read this on Good Friday. The last 6 months of my life has been a bit of chaos. I’ve been feeling rather ‘lost’ and unsure of who I am anymore, what direction I should be going. And so today, Good Friday 2012, I received a small manila envelope in the mail from my mother. In it was 2 Easter cards, one for me, one for my significant other, Steve, and a printed copy of this exerpt from your blog with a small hand-written note saying “Ann found this on the internet, I sent one to your brother as well. Love, Mom” And by now you’re wondering why this is so significant to me.
Deacon Hank was my Dad. I am his middle child. I have felt such a sadness and void since his passing; it has truly affected my life, who I am, how I live. Having the opportunity to read your story and be reminded, once again, of the love and caring my Dad put forth to every person he met. I want you to know that when my Dad said he’d pray for you, your husband, your family, he didn’t just pray that night, or the next week. He prayed for you every night until the night he passed. He would pray every day, every night and had a list longer than Santa Claus of people he would pray for. He had just gotten done with his prayers on the night of 1/28/11, before he passed on.
Thank you so very much for sharing this story. It is an incredible reminder of the person he was. And May God continue to Bless you and your beautiful family. I know my Dad is watching down over you and smiling <3
Kerin O'Brien
Andi says
Kerin – I intend to email you privately, but will also thank you here for commenting. I often wonder if your father is interceding for us even now. The cross he gave me still hangs in its spot in Nathan’s room; the only time I’ve ever taken it down was to take the photo above.
I’m happy that you approve of my small tribute to your father. It is the least I could do for what he did for us.